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United Nations. 269 43 When implemented in combination, these supports have enhanced the contributions to society made by individuals with a propensity to engage in problem behavior. This mindset can be harmful in the long run, especially when theyre being cared for by ageing parents. Care Plan Templates The aim of the QCS Care Planning Module is to ensure that adult social care professionals are able to deliver high quality person centred. Saldaa D, lvarez RM, Lobatn S, Lopez AM, Moreno M, Rojano M. Objective and subjective quality of life in adults with autism spectrum disorders in southern Spain. The major focus of the planning process is to increase quality of life for the focus person by developing his or her relationships and strengths. At the commencement of each group, parents were provided with stimulus material in both written and verbal form. The .gov means its official. hbbd``b`@D`I+W449,Fr?}0 the contents by NLM or the National Institutes of Health. Parents also expressed their hope that a mentor or other support person could help their young person with ASD understand the value of completing self-care tasks, such as teeth cleaning. What is a person-led approach? - Principles for effective support However, living an independent life does come with its fair share of challenges, be it emotional or social. This process occurred through collaboration between researchers, and involved review of the meaning units identified during the focus groups. Disabilities The SRS-2 has been widely used in clinical practice and research to quantify autistic traits demonstrating high sensitivity and specificity [3739]. It is most often used for life planning with people with learning and developmental disabilities, though recently it has been advocated as a method of planning personalised support with many other sections of society who find themselves An inductive approach was utilised to gain an understanding of the experience of families of young adults with ASD in normative IQ range as they transition to adulthood [29], from here on in this article this population of interest will be referred to by the term ASD. 0000002665 00000 n While representative sampling and generalisation is not the goal of qualitative research, findings from this study are potentially transferable [51], as they provide an in-depth description of the perspective or parents of young adults with ASD in the normative IQ range. Cieza A, Geyh S, Chatterji S, Kostanjsek N, Ustun B, Stucki G. ICF linking rules: an update based on lessons learned. While parents highly valued mentors they highlighted that they needed to be consistent and reliable, pointing to the negative impact of mentors changing or reneging on their commitments. The final theme to succeed was characterised by parents expressing their desire for their young person to become a successful adult, however, parents definitions of success varied greatly. Parents reiterated the importance of their young person being afforded opportunities to experience success by leveraging their special interests and strengths, potentially fostering their motivation, resulting in positive experiences and building self-confidence. Helping their children to understand the world involved preparation and support for independence and social integration are available in S4 Table. The International Classification of Functioning, Disability and Health (ICF) [32] guided data collection and analysis, as part of a directed content analysis approach [33].